It’s what’s inside that counts

Since March, I have now had four or five pelvic ultrasounds (yes, both the external and the internal probe Congress loves so much) and a pelvic MRI.

Here is what we know:

There are masses inside of me and they are growing, and they need to be removed.

Here is what we think we know:

One of the masses is an ovarian endometrioma the size of a tennis ball (and growing). Until late June I’d never heard of such a thing but turns out I’m intimately acquainted and just didn’t know it. Essentially, I have endometriosis that has invaded my left ovary and taken over to the point that it likely cannot be extracted and removed; the whole ovary has got to go.

I have other masses in my uterus that are fibroid tumors. At least one of them is also the size of a tennis ball. I was sent to have an MRI this past week to find out the number and size and placement of them all, since apparently, from the expression on my specialist’s face, there’s a bunch of crazy shit happening in there, all together, that has her thinking I should get a hysterectomy, STAT.

My specialist asked me, while prodding around my guts with her fingers, if I was done having children. Well, I said, I didn’t think I was. She pressed her hand down on my lower stomach from the outside and pressed her fingers inside of me upward, so her hands met around the parts inside of me that are swollen and cramped, and I felt a pain so deep it didn’t register in my body but it registered deep in my emotions and I began crying.

I am 34. I have always had regular periods that last three to five days and that come with minimal discomfort. I’ve never been on hormonal birth control and I had a quick and lovely eight-hour natural labor and delivery. I have always joked about being built for breeding, with my wide hips. I have had friends and family who’ve fought with period pain, endometriosis, cysts, fibroids and excessive bleeding and have always counted myself as being very fortunate to have a system that seemed, more or less, to do its thing and keep the peace.

I have finally met the man I want to spend the rest of my life and have a family with, and, in my more selfish moments, it’s a little like a cosmic middle finger in the face to think that that might not even be on the table for us.

My gynecologist asked me if I have a high pain tolerance. On the one hand, how great to have not suffered from the discomfort of my insides twisting and growing and crowding my organs. On the other hand, the lack of pain means I didn’t even realize what was happening for so long, and now it’s likely too late to really fix it and keep it functional.

I go back to the doctor Thursday to find out exactly what the MRI shows and what’s next. I know it will not be great news because they called and moved my follow-up appointment up a week. They told me come by whenever; they will work me in. That only happens if something is concerning enough to need action.

My family and friends are of course being supportive and wonderful in every way. My mom had a major bout of fibroids in her 40s and ended up with a hysterectomy. But she’d already had three kids and had her tubes tied; she knew she was done adding to her family. But she knows what a tough row to hoe this can be for the brain and body when it happens.

I had hoped I was finally getting to start a family in earnest, with someone who loves me and my son. It will be difficult to let that dream die before it even had a chance, if that’s what it comes to.

I know I will need surgery. I just don’t know how much and how soon and how serious.

I know I can feel a dull thud of pain on my left side where the ovary continues to grow larger each menstrual cycle. That pain wasn’t there four months ago.

I know sitting up from lying down is increasingly uncomfortable.

I know I can feel tenderness all across my belly, and sharp pain whenever a not-to-be-named 4-year-old gut-checks me while wrestling.

I know I am scared.

5 thoughts on “It’s what’s inside that counts

  1. Long-time reader, first-time commenter here. Just wanted to let you know that a stranger from across the internet feels bad for what you’re going through right now. Coming from another family rich in fibroids and other female issues, I know that girly troubles are a figurative and literal pain, and even worse when they’re potentially life-changing.

    Best of luck to you. I’d send good juju your way if I thought it would really help. :-)

  2. Lindsey,

    I have followed your blog on and off since your Memphis days. I am sorry for your difficulties. At 66 I have learned that stuff happens. You adjust to a “new normal'”. It is not the end of the world. Life goes on and unfolds as it should. You will survive and adapt. I am sure you will enjoy many more enjoyable and productive years! Perhaps not as you dreamed but they will be good in ways you have not perceived.

  3. Pingback: And then there was one … ovary | theology&geometry

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